5 Reasons You Should Join MDA Muscle Walk
Learn why five MDA families are equally dedicated to Muscle Walk — and why you should also support this incredible cause.
Tag: Muscle Walk
SMA, Spinraza, and a birthday celebration
Tammy Carroll, whose daughter Alexas as SMA type 2, shares the importance of birthdays and the FDA’s approval of Spinraza
Why We Love Our MDA Community
When Jayden Long learned four years ago that the firefighters in his hometown of Nampa, Idaho, had to work on Christmas, he devised a plan. “He wanted to deliver baked goods to the firefighters on Christmas day,” recalled his mother, Shellie. “So we baked just about all night and delivered trays of food to three . . .
Woman with Miyoshi myopathy Works Hard, Plays Hard and Muscle Walks With All Her Heart
Melanie Carson has peered into the Grand Canyon and craned her neck looking up at the giant Redwoods of Northern California. She’s felt the mist of waterfalls in Hawaii and gazed at Yosemite’s Half Dome. She’s done it all, and wants to do more. That’s all while living with a rare type of Limb-girdle muscular . . .
Why I Walk: So that Miguel Can Walk, Too
“November 1, 2011 was the day that everything changed for our family. We were sitting in a room with no windows and seemingly no air to breathe and the news came like a bulldozer: Duchenne muscular dystrophy, a muscle wasting disease with no cure that is 100% fatal. I couldn’t believe it. All I wanted to do . . .
Supporting kids at MDA Summer Camp, Casey’s helps them reach their full potential
For companies like Casey’s, supporting their community and giving back is not only part of their mission, but it also helps define them as a company. Over the past nine years, Casey’s has supported MDA and the MDA Summer Camp program by raising more than $6.6 million. Their support has helped kids with muscular dystrophy . . .
Some said he would be in a wheelchair by now. Devin Argall said “Watch me!”
A passionate ATV rider and supportive big brother, 14-year old Devin Argall is defying the odds at every turn. The Wisconsin State Goodwill Ambassador was diagnosed with Duchenne muscular dystrophy (DMD) at the age of two, and doctors told him he would likely need a wheelchair by 10 years old. Today, Devin continues to walk . . .
Why We Walk: Joe Akmakjian’s Photo Essay of the 2016 Denver Muscle Walk
Earlier this month, in my home state of Colorado, I had the honor of attending the Denver MDA Muscle Walk with some amazing families and individuals. Not only was it great to be back home, it was wonderful meeting so many inspiring groups of people. It never ceases to amaze me how close everyone in . . .
