Sawsan Abuosbie, Who Lives with SMA, Talks College, Job Hunting and Work Life
In recognition of National Disability Employment Awareness Month, Sawsan, who lives w SMA, shares her experience of joining the work force.
Tag: Personal Stories
Camino de Santiago Hiker with BMD Finishes His Trek
Bryan Steward, who lives with BMD, shares that he completed his trek on the 500-mile Camino de Santiago.
Elected Official with BMD Speaks Out Publicly for the First Time about His Disease
Elected official Jason Morgan, who lives with BMD, speaks out publicly for the first time about his disease
Hiker with BMD Checks in from the Camino de Santiago
Bryan Steward, who lives with Becker muscular dystrophy, set out to hike the 500-mile Camino de Santiago in Northern Spain last month. As he nears the end of his journey, he checked in again with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan’s entries with wisdom from their own journey.
State Ambassador Who Lives with FA Shares the Only Failure is Not Trying
Angie Wilkerson, who lives with FA, believes the only failure lies in not giving yourself the chance to try something new.
There’s Life With CMT, and There’s Also Everyday Life
Lindsey Baker, who lives with CMT, writes about adjusting to life after the end of a relationship.
With One Finger, AJ Brockman Paints the World
AJ Brockman, an artist who lives with SMA, uses only the index finger on his left hand to create works of art.
Hiker with BMD’s Update from the Camino de Santiago
Bryan Steward, who lives with Becker muscular dystrophy, is hiking the 500-mile Camino de Santiago in Northern Spain, and he just checked in with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan with memories from their own journey.
Debunking Myths about SMA
MDA National Ambassador Joe Akmakjian debunks a few myths about SMA in recognition of SMA Awareness Month.
Becoming a Scholar and a Mother: Reflections from a Student with LGMD
Pearl Burgin has faced her share of setbacks as she navigated life with limb-girdle muscular dystrophy, motherhood and higher education as an adult student. But, as she writes in this reflection on going back to school, “I am fortunate to have found a way to become a mom and a scholar. If anyone else is wondering if getting an education while living with a neuromuscular disease and raising a family is possible, I hope they consider their situation, review their options and find resources that will help. Remember not to let doubt hold you back from becoming all that you want to be. Just do what works for you. I challenged myself, worked hard, and it’s paying off. Now for the next goal: grad school.”
