Hiker with BMD Checks in from the Camino de Santiago

Bryan Steward, who lives with Becker muscular dystrophy, set out to hike the 500-mile Camino de Santiago in Northern Spain last month. As he nears the end of his journey, he checked in again with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan’s entries with wisdom from their own journey.

Read More

Hiker with BMD’s Update from the Camino de Santiago

Camino de Santiago

Bryan Steward, who lives with Becker muscular dystrophy, is hiking the 500-mile Camino de Santiago in Northern Spain, and he just checked in with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan with memories from their own journey.

Read More

Becoming a Scholar and a Mother: Reflections from a Student with LGMD

Pearl Burgin has faced her share of setbacks as she navigated life with limb-girdle muscular dystrophy, motherhood and higher education as an adult student. But, as she writes in this reflection on going back to school, “I am fortunate to have found a way to become a mom and a scholar. If anyone else is wondering if getting an education while living with a neuromuscular disease and raising a family is possible, I hope they consider their situation, review their options and find resources that will help. Remember not to let doubt hold you back from becoming all that you want to be. Just do what works for you. I challenged myself, worked hard, and it’s paying off. Now for the next goal: grad school.”

Read More