Andrew Nichols, Age 8 Newark, OH Home and Family Andrew lives at home with his younger brother Ethan, and parents Jodi and Mitch. He loves his animals and especially his soon to be service dog, Hero! Diagnosis David was diagnosed with Duchenne muscular dystrophy when he was 3 years old. DMD is a genetic disorder . . .
Caleb David Pendley, Age 14 Oklahoma Home and Family Caleb has two loving parents, Marlene and Noel, along with three siblings; Isaac (17), Micah (11) and Abigail (9). His family recently traveled to the Grand Canyon and they had a great time! Diagnosis Caleb was diagnosed with Duchenne muscular dystrophy at the age of 8. . . .
Christopher Hay, Age 8 Hubbard, OR Home and Family Christopher is the son of Tammy and James Hay. He has one older sister, Emily. Diagnosis Christopher has Spinal Muscular Atrophy (SMA) Type 2. He was diagnosed in September of 2007. SMA is a genetic disease affecting the part of the nervous system that controls voluntary . . .
Carlee Weber, Age 12 Williamsport, PA Home and Family Carlee lives with her mom Nicole, stepfather Keith, brother Chase, stepsister Morgan, 2 cats and 2 dogs. Diagnosis Carlee was diagnosed with Spinal muscular atrophy (SMA). SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. The age at . . .
Phoebe Szosz, Age 13 Barrington, RI Home and Family Phoebe lives with her parents and two older sisters. Phoebe’s father, Noah, also lives with Charcot-Marie-Tooth (CMT). Diagnosis Phoebe was diagnosed at age 11 with CMT, a disease her father has been diagnosed with although, his onset was later in life. CMT results in overall muscle . . .
Trent Tomco, Age 11 Aiken, SC Home and Family Trent is the son of Michelle and Paul Tomco. He has two brothers and two sisters. Diagnosis Trent has Duchenne muscular dystrophy (DMD). DMD is a genetic disorder characterized by progressive muscle degeneration and weakness. DMD is caused by an absence of dystrophin, a protein that . . .
Tysen Cook, Age 16 Watertown, SD Home and Family Tysen is the son of Nicole Cook-Rieffenberger and Justin Ward. Tysen lives with his mother, step-father-to-be, Brad, and 3 brothers, Braxtyn, Camdyn and Cruz. Diagnosis Tysen was diagnosed with Friedreich’s Ataxia (FA). FA’s major neurological symptoms include muscle weakness and ataxia, a loss of balance and . . .
Aiden Atkins, Age 10 Lebanon, TN Home and Family Aiden is the son of Alan and Michelle. Aiden is outgoing and loves to be the center of attention. He is very well-spoken and converses easily with all who have the opportunity to meet him. Diagnosis Aiden was diagnosed with Congenital Muscular Dystrophy (CMD) in 2008. . . .
Bryant “B.J.” Bond, Age 12 Stafford, TX Home and Family BJ lives with his mother and miniature poodle, Cinnamon. Diagnosis In 2005, he was diagnosed with Spinal Muscular Atrophy Type III, at Texas Children’s Hospital, an MDA Clinic in Houston. Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system . . .
Devin Sundquist, Age 11 Orem, UT Home and Family Devin lives at home with three sisters, his mom and step dad. He loves to play board games and hang out with his family. Diagnosis Devin was diagnosed with Duchenne muscular dystrophy at the age of seven. Duchenne muscular dystrophy (DMD) is a genetic disorder characterized . . .
