“It truly feels as if my entire career path has been leading me to this role,” said Vos. “I am excited to bring my passion for patient care and advocacy, as well as my success using new technology to build new, innovative communication approaches, to lead MDA in the fast-changing world of research and patient care.”
In lieu of gifts, the Fosters, who met at MDA Summer Camp, asked wedding guests to make a donation to MDA instead.
Angie Wilkerson, who lives with FA, believes the only failure lies in not giving yourself the chance to try something new.
Meet Lauren McLane, a young adult living with FSHD who’s exploring her independence with some help from SYNERGY HomeCare.
Multifocal acquired motor axonopathy (MAMA) is an extremely rare neuromuscular disease that is often misdiagnosed as ALS (amyotrophic lateral sclerosis) due to similarities in the symptoms that initially occur in affected individuals.
State specific Hurricane Irma resources for Florida, Georgia, North Carolina and Virginia.
In recognition of World Duchenne Awareness Day we share our support w all DMD families, including Stacey Hudak and her son Ryan, who lives w DMD.
Is your family prepared for a weather-related emergency? In anticipation of extreme weather, we’ve pulled the top four tips your family needs to know:
In October 1986 Jerry Lewis announced the DMD gene had been discovered, a monumental moment in MD research.
Donnie Foster, who lives with CMT, shares his story of trekking from MO to Vegas to meet Jerry Lewis at the telethon.
