SMA, Spinraza, and a birthday celebration
Tammy Carroll, whose daughter Alexas as SMA type 2, shares the importance of birthdays and the FDA’s approval of Spinraza
Category: Living with Muscular Dystrophy
MDA’s Mobility Equipment Webinar Recap
Last week, MDA’s Mobility Equipment Webinar explored how to find the right mobility equipment to meet the needs of individuals and families living with neuromuscular diseases.
Man’s Best Friend
Writer and artist Erin Brady Worsham shares how ALS can affect your relationship with the furry members of your family.
International Day of Acceptance
International Day of Acceptance is a day when people all over the world vow publicly to accept and embrace their challenges and support others no matter their abilities.
Woman who has CMT encourages others by participating on MDA Team Momentum
For Ava Illingsowrth there are no barriers. There are no obstacles. For her, challenges are just opportunities to defy limits. Ava is a runner with the MDA’s Team Momentum, MDA’s endurance training team that helps people train for half or full marathons while supporting kids and adults living with muscular dystrophy. Ava herself is one . . .
Join us for a mobility equipment webinar on Jan. 19
Join us for a special webinar on January 19 (12 p.m. PST; 1 p.m. MST; 2 p.m. CST; 3 p.m. EST) that will explore how to find the right mobility equipment to meet your needs.
Announcing MDA’s New National Community Advisory Committee
MDA is excited to announce that we are accepting applications for the inaugural National Community Advisory Committee, a group that will advise MDA on matters of importance to families living with neuromuscular diseases and help inform MDA’s efforts to support individuals to live unlimited.
Life Is About the Journey: 15-Year-Old With CMD #LivesUnlimited
When opportunity knocks, 15-year-old Justin answers. Born with CMD, Justin has traveled to China, been on a 500-mile bike ride across Iowa, and even modeled in a fashion show. How? Justin always says, ‘Yes.’ That’s how he lives unlimited.
Ode to Mascara
Mindy Henderson, who has SMA, shares her story of love and loss with one of America’s most popular cosmetics.
An endurance challenge, a cherry picker and a myasthenia gravis diagnosis
Gina Pieroni’s passion for MDA fundraising started with an endurance challenge, a cherry picker and desire to help others.
