Five Questions with Researcher Johanna Hamel
Learn more about researcher Johanna Hamel’s clinical research training fellowship.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Becoming a Science Person, Sort Of: My First Research Blog
Joe Akmakjian shares highlights from his interview with MDA grant recipient Mattia Quattrocelli.
Recently Diagnosed with ALS, Northern Kentucky Attorney Raises More Than $11K at MDA Lock-Up
Brian Eviston shares the personal reason he chose to participate in his local MDA Lock-Up.
MDA Joins with Nine Patient Advocacy Organizations to Respond to Release of Revised Legislative Draft of Senate Health Care Reform
This week, MDA joined with nine other patient advocacy organizations – including American Cancer Society Cancer Action Network, Cystic Fibrosis Foundation, March of Dimes and National Organization for Rare Disorders – to respond to the Senate’s newly-released draft of the Better Care Reconciliation Act (BCRA).
Mason’s Movers set to take on Marine Corps Marathon
Alicia Miro, whose son lives with MD, shares why she runs the Marine Corps Marathon with MDA Team Momentum and why you should too.
Co-Sponsored Clinical Research Training Fellowship Supports Research in Myotonic Dystrophy
Johanna Hamel, M.D., received an MDA co-sponsored Clinical Research Training Fellowship for her work studying myotonic dystrophy (DM).
Online DMD Study Seeks Parents to Participate
Parents of young boys with DMD, as well as parents of age-matched non-affected boys, are being sought to participate in an online observational study.
ALS Treatment Update: MDA to Host Radicava Webinar July 12
MDA and MT Pharma America will host a webinar to provide ALS families with info about Radicava.
My Garden of Life
Erin Brady Worsham, who lives with ALS, offers the idea that life in her garden may not be all too different from our own lives.
FDA Grants Orphan Drug Designation to Octapharma USA’s Experimental Dermatomyositis Drug Octagam
Octapharma USA’s investigational drug IVIG (brand name Octagam) to treat dermatomyositis, has received FDA orphan drug designation.
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