Try not to be inspired by this round-up of Team Momentum stories
Take a look at some of the most heartwarming MDA Team Momentum stories guaranteed to give you all of the feels.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Advisory Committee Meeting Scheduled for Translarna
Translarna, a new drug under development that may slow functional decline in individuals with DMD cause by nonsense mutations, will be reviewed by an Advisory Committee of the U.S. Food and Drug Administration on Sept. 28, 2017. An FDA decision on the drug is expected on or before Oct. 24, 2017.
Pete Frates, the ALS Ice Bucket Challenge and a Special Connection
When Chris Anselmo, who lives with Miyoishi myopathy, learned that Pete Frates’, the creator of the ALS Ice Bucket Challenge was facing challenges paying his medical bills, he felt compelled to share his story.
The Big Heart Hero
Stacy Coleman wrote “The Big Heart Hero,” a short children’s story, to inspire her two young sons Hayden and Mason, who live with Charcot-Marie-Tooth (CMT), and others to find strength in every day moments and to never give up on what you want to become. Stacy, who also lives with CMT, and her family are active in the MDA community in Texas.
MDA Supports Robust NIH Funding
MDA remains committed to sharing with Congress and the Administration the many reasons why increased funding is critical to developing therapies for neuromuscular disease.
Simply Stated: What Causes ALS?
While there is little known about what causes ALS, scientists continue seeking out answers in the hope of finding new treatments and cures.
Ray Rides On: New Event Honors Avid Cyclist and ALS Awareness Champion
The inaugural “Ride for Ray” honors Ray Spooner, whose “Little Ride” across the country for MDA raised more than $80,000 for ALS research and support services. A year after his death in August 2016, cyclists from across the country will join family, friends and local supporters to continue the work Ray started.
Community Rallies to Help MDA Summer Camp Give Kids the Best Week of the Year
When an MDA Summer Camp needed help, the local community stepped up to the plate in a big way.
Siblings Run 10K Together with Help from Team Momentum
Siblings Hugo and Maria Trevino participated in the Chicago Spring Half Marathon and 10K with MDA Team Momentum.
Following in her Father’s Footsteps: Daughter Hikes Pacific Crest Trail to Raise Funds for ALS Research
Sophia Spooner will be hiking the Pacific Coast Trail to raise funds for MDA in memory of father, Ray Spooner, who lived with ALS.
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