What Happens When the Caregiver Needs Care?
When Erin Brady Worsham’s husband and primary caregiver was temporarily unable to provide care, major adjustments had to be made.
Tag: Amyotrophic Lateral Sclerosis (ALS)
Encouraging Clinical Study Data Reported for ALS Drug Edaravone
Osaka-based Mitsubishi Tanabe Pharma has reported encouraging 12-month efficacy and safety data for edaravone (brand name Radicava) for the treatment of ALS. Edaravone is delivered by intravenous injection. It’s thought to work by relieving the effects of oxidative stress, which, in people with ALS, has been suspected to play a role in the death of . . .
MDA Holiday Gift Guide
Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .
Matthew Disney Receives MDA Grant to Research Myotonic Dystrophy & ALS
Five Questions with Researcher Matthew Disney Matthew Disney, a professor at the Scripps Research Institute in Jupiter, Fla., was awarded an MDA research grant totaling $300,000 over a period of three years to optimize two novel drug-like compounds — one that targets toxic RNA in myotonic dystrophy and another that targets toxic RNA in ALS . . .
“Walk Like Penguins” : My Dad’s ALS Story & A Children’s Book
I had never heard of ALS (amyotrophic lateral sclerosis) before my dad was diagnosed. Those three letters had no significant meaning to me or my family. Now, they are still all around us, in our day to day, swirling through our minds like windswept leaves. They are forever present, always staring back at us, in . . .
Chris Benyo’s Memorial Marathon with Team Momentum Celebrates Life
Since my wife passed away in July, there hasn’t been a lot of happiness in my life. It’s just been putting one foot in front of the other and taking everything day by day.
Then the Bank of America Chicago Marathon happened.
Denise and I had planned to run our “golden marathon” on Oct. 9. It would have been our ninth marathon together on the ninth. When she passed in the summer, I wasn’t sure if I’d ever want to use her race chair again.
The Little Bird & An ALS Diagnosis
What does a small bird have in common with an ALS diagnosis? Artist Erin Brady Worsham eloquently shares. We are crazy about birds at our house. We have seven feeders scattered around our enclosed backyard and two feeders in the front yard. We have been blessed with a number of tall trees in our yard, . . .
Chris and Denise Benyo: A love story written by faith, running, eHarmony and an ALS diagnosis
In the fall of 2009, I met a girl. Not in the traditional way — I met Denise via eHarmony. Yes, we were an eHarmony success story. We often joked about the eHarmony commercials with the two incredibly good-looking people dancing in a beautiful garden or around a fountain. We thought how cool it would . . .
MDA and Target ALS Will Work Together to Support Young ALS Investigators
MDA and Target ALS Foundation have announced a partnership aimed at advancing ALS research and therapy development. Through the partnership, the two organizations will work together to support talented young scientists who choose to pursue a career devoted to ALS research. The partnership represents a key step in MDA’s commitment to form strategic alliances with . . .
Losing a Father to ALS and Raising Money for a Cure: One Daughter’s Story
On March 6, 2016, a bomb went off in my life. Its name was ALS. I had vaguely heard of ALS by way of YouTube “Ice Bucket Challenge” videoes. But that day, the most important person in my life, my Dad, Dr. John J. Hutton, was given, as he termed in, “a death sentence.” He . . .
