Researchers at Orion Pharma are looking for participants with ALS (amyotrophic lateral sclerosis) to participate in the REFALS Phase 3 study. The study is designed to help researchers evaluate the effects of oral levosimendan (ODM-109) on respiratory function in patients with ALS. Participants will be randomized to receive either levosimendan or placebo to determine whether . . .
Former NFL great Dwight Clark died from ALS (amyotrophic lateral sclerosis) on June 4, a little more than one year after revealing he had the disease. Clark was immortalized when he caught the winning touchdown pass in the NFC Championship Game in January 1982, sending the San Francisco 49ers to their first Super Bowl. The . . .
Ryan Farnsworth, 31, is passionate about spreading a positive message to others going through a tough time. Since receiving an ALS diagnosis in 2015, Ryan has made a conscious effort to maximize every moment of every day. As he has grown weaker, he has become even more determined to make a lasting impact on the . . .
On May 11, your daily cup of coffee can boost more than your energy — it can also bolster MDA’s quest to end ALS. For 12 years, Dutch Bros. Coffee has supported MDA through Drink One for Dane Day, a fundraiser launched in 2007 in honor of Dutch Bros. co-founder Dane Boersma, who was diagnosed . . .
In 2007, Karen Toennis received an unexpected phone call. On the other end of the line was Dr. Stanley Appel, the neurologist who cared for Karen’s husband, Mike, during his 13-year battle with ALS. They had not spoken since Mike’s passing the year before, but Dr. Appel had a question for Karen. “At first I’m . . .
MDA has awarded a human clinical trial grant totaling $750,000 to ALS ONE to explore the potential for a type of imaging called positron emission tomography (PET) to measure inflammation in the brain that could serve as a biomarker for ALS. ALS ONE is an alliance between four institutional leaders in ALS treatment development: Massachusetts . . .
From April 16 to 20, we’re celebrating National Volunteer Week! We’re so thankful for our MDA volunteers who give of their time and talents to help families with muscular dystrophy, ALS and related diseases. If you’re an MDA volunteer, consider this your virtual hug from us! If you’d like to become a volunteer, we’d love . . .
Justin Rumley is using his entrepreneurial skills to fundraise for ALS research in memory of his father Steve, who lived with the disease. Learn more about Justin’s Coffee for a Cure and ALS Bike Trek MN fundraisers.
In the last year MDA awarded a number of research, development and venture philanthropy grants to individuals dedicated to finding treatments and cures for ALS.
Udai Pandey was awarded an MDA research grant totaling $300,000 over three years to identify new drugs for ALS caused by a mutation in the FUS gene.
