There’s Life With CMT, and There’s Also Everyday Life
Lindsey Baker, who lives with CMT, writes about adjusting to life after the end of a relationship.
Category: Adults
With One Finger, AJ Brockman Paints the World
AJ Brockman, an artist who lives with SMA, uses only the index finger on his left hand to create works of art.
Becoming a Scholar and a Mother: Reflections from a Student with LGMD
Pearl Burgin has faced her share of setbacks as she navigated life with limb-girdle muscular dystrophy, motherhood and higher education as an adult student. But, as she writes in this reflection on going back to school, “I am fortunate to have found a way to become a mom and a scholar. If anyone else is wondering if getting an education while living with a neuromuscular disease and raising a family is possible, I hope they consider their situation, review their options and find resources that will help. Remember not to let doubt hold you back from becoming all that you want to be. Just do what works for you. I challenged myself, worked hard, and it’s paying off. Now for the next goal: grad school.”
Researcher with LGMD Aims to Bring Genetic Diagnoses to People Around the World
Monkol Lek, a researcher at Massachusetts General Hospital and the Broad Institute, both lives with and studies limb girdle muscular dystrophy. He received a research grant from MDA to improve the diagnosis of rare muscle diseases, and this fall he will open his own lab at Yale.
With help from Dutch Bros., MDA is fighting to end ALS
Thanks in part to Dutch Bros. generous support, MDA is currently funding 38 active ALS grants, with a total funding commitment of $9.6 million.
Some said he was crazy to bike across America after being diagnosed with ALS. Ray Spooner said “Watch me!”
Ray Spooner, a certified nurse midwife who has ushered thousands of babies into the world, took the Ice Bucket Challenge in summer of 2014 to raise awareness about ALS. At the time, ALS “was just of jumble of letters to us,” said Ray’s wife of 33 years, Rae. Soon though, those letters would take on a . . .
Curb Free With Cory Lee Reviews Morgan’s Inspiration Island
Accessible travel blogger, Curb Free With Cory Lee, shares his thoughts on Morgan’s Inspiration Island.
Recently Diagnosed with ALS, Northern Kentucky Attorney Raises More Than $11K at MDA Lock-Up
Brian Eviston shares the personal reason he chose to participate in his local MDA Lock-Up.
My Garden of Life
Erin Brady Worsham, who lives with ALS, offers the idea that life in her garden may not be all too different from our own lives.
Inspiration is an Action Word
Doug McCullough often hears that he is inspiring. His response: “OK, thanks. But what have I inspired you to do?”
