Caregivers Give Back: Parents of Son with DMD Offer Advice for Others, Raise Money for MDA
The Moctezumas share how they have become experts at caring for their 25-year old son, Michael, who lives with DMD.
Author: Chris Anselmo
A Letter to Mom on Mother’s Day
Chris Anselmo, who lives with Miyoshi Myopathy, shares a letter to his mom and all MDA moms this Mother’s Day.
Finding Strength When Weakness Overwhelms: Filmmaker with Mitochondrial Disease Speaks Out to Empower Others
Filmmaker Tom Caamano, who received a surprise diagnosis of mitochondrial disease in 2009, perseveres despite symptoms, which include muscle weakness and fatigue, that threatened to derail his career. Today, he is not only thriving, he’s helping others facing similar diagnoses feel empowered, too.
Raising Awareness for MDA in Her Own Fashion: Massachusetts State Ambassador Keisha Greaves Advocates in Style
31-year old Keisha Greaves of Cambridge, Mass., lives her life with flair. With a degree in fashion design and merchandising, this fashionista lives and breathes style. Keisha, who has a subtype-unknown form of limb-girdle muscular dystrophy (LGMD), uses her fashion background to bring together her two of her favorite passions: clothing design and advocacy.
Former MDA Camper and State Ambassador Named Ms. Wheelchair Wisconsin
Myranda Gereau met Ms. Wheelchair Wisconsin as a girl at MDA Summer Camp at age 8. Now, years later, she proudly wears the crown she dreamed of as a child.
Giving Back to MDA: Meet Henry, the Shamrockstar whose Family Found Hope and Community in the Wake of a Duchenne Diagnosis
Meet Shamrockstar Henry, whose positive attitude stems from his family’s optimism about potential treatments and cures for Duchenne muscular dystrophy.
Seeing the World Thanks to MDA Shamrocks: Meet Gabrielle, the Traveling Shamrockstar
Fourteen-year-old Kentucky native Gabrielle’s favorite subject is geography, which is appropriate when you have an insatiable desire to travel. Gabrielle, who has spinal muscular atrophy (SMA) Type 2, has already seen a great deal of the world, including Europe, the Caribbean and the western United States. This year, Gabrielle is featured as a “Shamrockstar” on platinum MDA Shamrocks at retailers across the country, a country that Gabrielle has seen extensively in her travels with her family.
From Puerto Rico to Summer Camp: Meet Alejandro, the Shamrockstar who Found Hope Thanks to MDA
Alejandro, who is the local Atlanta-area ambassador for MDA, is one of ten “Shamrockstars” who will be featured on MDA Shamrocks this year at retailers across the country. His gold shamrock will be available exclusively at Lowe’s Home Improvement stores.
A Strong Voice: Meet Torrance, the Outspoken Shamrockstar
Over the past 35 years, the MDA Shamrocks program has raised more than $300 million to help save and improve the lives of families living with muscular dystrophy. Get to know Torrance, who graces the 2017 gold MDA Shamrock.
An endurance challenge, a cherry picker and a myasthenia gravis diagnosis
Gina Pieroni’s passion for MDA fundraising started with an endurance challenge, a cherry picker and desire to help others.
