Dyla, Who Lives With SMA, is Gaining Strength Thanks to Spinraza
Meet Dyla, a sweet 11- year-old who is greatly benefiting from the recently approved SMA drug, Spinraza.
Category: Kids
Faith Fortenberry, Who Lives With SMA, is Seeing Positive Results Thanks to Spinraza
Faith Fortenberry, who lives with SMA, is getting stronger everyday thanks to Spinraza.
Magic Wheelchair Makes Mario Kart Halloween Magic for Boy with DMD
Iker, who lives with DMD, got his dream Halloween costume this year with a little bit help from Magic Wheelchair!
A Mother’s Love and a Helping Hand from Numotion Give Boy with SMA Independence
Jack, who lives with SMA Type 1, is continuing to gain independence, part in thanks to Numotion.
Family of Two Boys Living with SMA Type 1 Reflect on Progress and Hope for their Sons
This SMA Awareness Month, meet the Medina family, whose two sons both live with SMA Type 1.
Mason’s Movers set to take on Marine Corps Marathon
Alicia Miro, whose son lives with MD, shares why she runs the Marine Corps Marathon with MDA Team Momentum and why you should too.
Montana boy first in the state to receive Exondys 51
Trayton, who lives with DMD, is the first boy in Montana to receive the breakthrough DMD treatment Exondys 51
The Big Heart Hero
Stacy Coleman wrote “The Big Heart Hero,” a short children’s story, to inspire her two young sons Hayden and Mason, who live with Charcot-Marie-Tooth (CMT), and others to find strength in every day moments and to never give up on what you want to become. Stacy, who also lives with CMT, and her family are active in the MDA community in Texas.
Sharing is Caring: Why the Krieger Family Walks
Bryant and Sarah Krieger’s son Fritz was diagnosed with Duchenne muscular dystrophy in February of this year. Less than a month later, their family, along with dozens of other supporters, were walking to bring strength to life at the Muscle Walk of Phoenix as part of Team Fritz & Friends. Here, on Fritz’s first birthday, Sarah allows us a glimpse inside her thoughts by sharing these emotional and moving entries from her journal.
A Future Built on MDA Research: Meet Garin, the Budding Architect Shamrockstar
Thirteen-year-old Garin, who lives with DMD, has a positive attitude that helps his family give him the best life possible. That includes one day becoming an architect who designs buildings for people who use wheelchairs. But first: MDA Summer Camp!
