Today is World Duchenne Awareness Day 2017
Learn about our most recently awarded research grants and the DMD families they have the potential to impact.
Category: Living with Muscular Dystrophy
Hiker with BMD’s Update from the Camino de Santiago
Bryan Steward, who lives with Becker muscular dystrophy, is hiking the 500-mile Camino de Santiago in Northern Spain, and he just checked in with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan with memories from their own journey.
Researcher with LGMD Aims to Bring Genetic Diagnoses to People Around the World
Monkol Lek, a researcher at Massachusetts General Hospital and the Broad Institute, both lives with and studies limb girdle muscular dystrophy. He received a research grant from MDA to improve the diagnosis of rare muscle diseases, and this fall he will open his own lab at Yale.
Some said he was crazy to bike across America after being diagnosed with ALS. Ray Spooner said “Watch me!”
Ray Spooner, a certified nurse midwife who has ushered thousands of babies into the world, took the Ice Bucket Challenge in summer of 2014 to raise awareness about ALS. At the time, ALS “was just of jumble of letters to us,” said Ray’s wife of 33 years, Rae. Soon though, those letters would take on a . . .
Curb Free With Cory Lee Reviews Morgan’s Inspiration Island
Accessible travel blogger, Curb Free With Cory Lee, shares his thoughts on Morgan’s Inspiration Island.
Recently Diagnosed with ALS, Northern Kentucky Attorney Raises More Than $11K at MDA Lock-Up
Brian Eviston shares the personal reason he chose to participate in his local MDA Lock-Up.
Mason’s Movers set to take on Marine Corps Marathon
Alicia Miro, whose son lives with MD, shares why she runs the Marine Corps Marathon with MDA Team Momentum and why you should too.
My Garden of Life
Erin Brady Worsham, who lives with ALS, offers the idea that life in her garden may not be all too different from our own lives.
The ALS Registry and Me
Alan Alderman who lives with ALS encourages others to join the ALS Registry.
How Having a Disability Helped Me Accept My Sexuality
Hugo Trevino shares insightful observations about the intersectionality of having a disability and accepting your sexual or gender identity — and how having SMA helped him come out and live proudly as a gay man.
