Hunter Hometown: Burnsville, MN Age: 10 Diagnosis: Charcot-Marie-Tooth Disease (CMT), which causes muscle weakness and atrophy, and some loss of sensation in the feet, the lower legs, the hands and the forearms. Favorite School Subject/Activities: Art and time in the library. Favorite People and/or Pets: I live with my parents, Alan and Dana, and my younger brother Hayden (7). . . .
Three-year-old Paxton is the tiny, grinning powerhouse that keeps his grandpa, Stuart Horton, going. His smile gets Stuart out of bed every morning and, even though it’s tough for the 53-year-old with Charcot-Marie-Tooth disease to travel, it’s his grandson’s future that motivates Stuart to participate in MDA Muscle Walk this year. “It’s the simple things . . .
Shamrock season is full swing! Have your local retailers gone green for MDA yet? MDA’s iconic paper Shamrocks sell for $1, $5 or more in tens of thousands of retail locations across the country each February and March and help families live longer and grow stronger. You can support MDA Shamrocks by adding this Twibbon to your social media . . .
Hannah Grace Thomas, Age 12 Fayetteville, AR Home and Family Hannah has a loving family including her Dad Mark, mom Mary, and sister Chelsea. She also has many aunts, uncles, cousins and her beloved dog Michi. Diagnosis Hannah has Charcot Marie Tooth, which causes damage to the peripheral nerves and relay sensations, like pain and . . .
Brayden Tiernan, Age 6 Fairdale, KY Home and Family Brayden is the son of Patrick and Rebecca Tiernan. He has 2 brothers, a dog and 2 cats. Diagnosis Brayden has Charcot Marie Tooth disease (CMT). CMT causes muscle weakness and atrophy, and some loss of sensation in the feet, the lower legs, the hands and . . .
David Corley Jr., Age 12 Plymouth, MA Home and Family David lives with his mom, grandparents and younger sister Chloe. Diagnosis David is affected by Charcot Marie Tooth (CMT), a genetic neurological disorder that causes damage to his peripheral nerves – tracts of nerve cell fibers that connect his brain and spinal cord to muscles . . .
Joseph “Joe or Slim” D. Megill, Age 15 Rio Rancho, NM Home and Family Joseph lives at home with his mom, dad, two sisters and four brothers. He also has two dogs and two cats Diagnosis Joseph was diagnosed with Charcot-Marie-Tooth (CMT) at the age of 10. CMT causes muscle weakness and atrophy, and some . . .
Samantha Grace Hyde, Age 7 Glenville, NY Home and Family Samantha lives with her 10 year old sister Ashley, parents Lora and Chris, and pet bunny “Princess” Diagnosis At age 2, Samantha was diagnosed with Dejerinne-Sotta Disease. Dejerene-Sottas (DS) is a subtype of Charcot-Marie-Tooth disease (CMT). DS is a severe neuropathy (disease or abnormality of . . .
Phoebe Szosz, Age 13 Barrington, RI Home and Family Phoebe lives with her parents and two older sisters. Phoebe’s father, Noah, also lives with Charcot-Marie-Tooth (CMT). Diagnosis Phoebe was diagnosed at age 11 with CMT, a disease her father has been diagnosed with although, his onset was later in life. CMT results in overall muscle . . .
Cassidy Wilson, Age 15 Roanoke, VA Home and Family Cassidy is the son of Jeanne & Dr. Jeffery Wilson. He has two brothers, Alex and Aiden, and a dog, Sammy. Diagnosis Cassidy has Charcot Marie Tooth (Type 2A), which causes damage to the peripheral nerves and relay sensations, like pain and temperature. CMT can cause . . .
